Topic
Privacy & data research, explained
2 open-access privacy & data studies, each with a flashcard deck and a quiz.
- Does anti-doping violate medical privacy?
Since WADA (1999), athletes must report whereabouts and urinate in view for samples — a surveillance and testing regime the authors say clashes with medical-ethics norms and received privacy.
- What does whole-genome sequencing owe African participants?
NGS makes WGS/WES feasible; African populations are uniquely diverse yet legally underspecified. The paper walks through consent, data sharing, return of results, incidental findings, and privacy against SA/US/EU law.