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Can consent stay alive after enrolment?

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Dynamic Consent is a personalised online platform for consent and communication so participants can be invited, updated, and followed as research uses change.

Source

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research

Budin-Ljøsne I, Teare HJ, Kaye J, et al. · BMC medical ethics · 2017

doi.org/10.1186/s12910-016-0162-9Read the full paper ↗193 citationscc by

Study at a glance

Design
Other — Conceptual proposal of Dynamic Consent platforms for ongoing biomedical research participation
N
Design/ethics proposal; not an empirical trial N
Population
Biomedical and biobank research participants facing changing secondary uses
Outcome
Personalised online consent/communication as an alternative to one-off static consent

Structured fields used in claim comparison tables when every cited study has a complete layer.

What they did

The authors set the problem of demanding informed consent in population and clinical studies, contrast biobank broad consent to multiple uses, and present Dynamic Consent as an interface for ongoing participation rather than a one-off signature.

What they found

The informed-consent process should ensure participants understand aims. Dynamic Consent platforms facilitate communication over time in changing research. Broad-consent definitions vary; a static form struggles when collections have multiple uses.

The limits

What it doesn't show

This is a conceptual proposal, not an RCT of a consent app. It does not prove recruitment will rise.

Key terms

Dynamic Consent
Personalised online consent and communication platforms for ongoing research participation.
Broad consent
Consent to a wide or multiple future uses of samples/data, rather than one study only.
One-off consent
A single enrolment signature that poorly tracks later changes in use.
Communication platform
The interface whose point is dialogue with participants, not merely a click-wrap form.

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Dynamic Consent is?

Common questions

What problem does it target?

Inviting people into research and following them as studies and uses change.

Is it only a form?

No. It is an online communication platform, not just a signature.

Why biobanks?

Collections are built as resources for multiple uses, straining one-time consent.

More on Informed consent