Topic
Informed consent research, explained
7 open-access informed consent studies, each with a flashcard deck and a quiz.
- Can consent stay alive after enrolment?
Dynamic Consent is a personalised online platform for consent and communication so participants can be invited, updated, and followed as research uses change.
- Is broad biobank consent good enough?
Study-specific consent looks strict but fits biobanks poorly; a modified broad consent that is also ‘deep’ best protects participants on the authors’ criteria-based model.
- Why is it so hard to judge whether a child can consent?
We still have no reliable way to tell when a child can give valid medical consent, and the authors argue that systematic measurement, not more theoretical debate, is the way forward.
- Is there a right not to know uncertain genetic findings?
The author argues that genetic findings of uncertain significance are not really knowledge, so the familiar debate over a right not to know misses the point, though people may decline to be told them.
- Who really decides for very sick children: doctors or parents?
Many paediatricians call their approach shared decision-making but actually steer grave decisions themselves, which the authors argue is justified to protect the child but not merely to shield parents.
- Can unconscious motives undermine transition consent?
After the Tavistock litigation, the authors argue that accepting medical transition to promote well-being is in someone’s best interests only if their transgender self-diagnosis is correct — and unconscious forces can undermine autonomy in children and adults.
- Should we nudge people into screening?
The help-bad-choosers argument says nudges fix deficient choosers; epistemic risk in screening (being wrong in knowledge-making, including false positives) undercuts that defence and even opt-out’s autonomy.