Treatment adherence
English TBQ validation
Open access · cc by · source: Europe PMC
Researchers adapted and validated an English Treatment Burden Questionnaire for chronic illness across US/UK/Canada/Australia using PatientsLikeMe.
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English TBQ validation
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610 of 3,000 invited patients completed the TBQ (20.3%).
In total, 3,000 patients were invited to complete the TBQ, and 610 (20.3%) did so between September and October 2013.
First factor explained 87% of the variance.
The first factor explained 87% of the variance, and had an eigenvalue of 5.91.
Key findings
TBQ showed a dominant first factor (87% variance), high item completion, and validity as a cross-condition treatment-burden measure—the first such English instrument in these countries.
Methodology
After pretesting and wording changes, 3,000 PatientsLikeMe members were invited; 610 completed the English TBQ; factor structure, construct validity, and reliability were assessed.
Limitations
Online chronic-illness volunteers may not represent all clinic populations, and burden scores are self-report.
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