English TBQ validation
Researchers adapted and validated an English Treatment Burden Questionnaire for chronic illness across US/UK/Canada/Australia using PatientsLikeMe.
Source
Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform
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English TBQ validation
These passages occur verbatim in the stored paper text. They support the points listed below; they do not verify every statement in the explanation.
610 of 3,000 invited patients completed the TBQ (20.3%).
In total, 3,000 patients were invited to complete the TBQ, and 610 (20.3%) did so between September and October 2013.
First factor explained 87% of the variance.
The first factor explained 87% of the variance, and had an eigenvalue of 5.91.
What they did
After pretesting and wording changes, 3,000 PatientsLikeMe members were invited; 610 completed the English TBQ; factor structure, construct validity, and reliability were assessed.
What they found
TBQ showed a dominant first factor (87% variance), high item completion, and validity as a cross-condition treatment-burden measure—the first such English instrument in these countries.
The limits
What it doesn't show
Online chronic-illness volunteers may not represent all clinic populations, and burden scores are self-report.
Key terms
- Treatment burden
- Workload and impact of health-care tasks on patients’ lives.
- TBQ
- Treatment Burden Questionnaire summing item burden scores.
- PatientsLikeMe
- Online patient network used for recruitment and feedback.
- Construct validity
- Evidence the scale relates to expected concepts such as adherence/QoL.
- Test–retest reliability
- Stability of scores over repeated administration.
- Factor structure
- How items cluster; here one dominant factor explained most variance.
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Main product of this study?
Common questions
How many completed validation?
610 of 3,000 invited (20.3%).
Where were patients from?
Mainly USA, also Canada, UK, Australia and others.
What was added in English adaptation?
Items on financial burden and provider relationships.
Key result?
First validated English TBQ for multi-condition treatment burden.
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